Donate to the Museum

POSTPONED: History + Highballs: Chasing My Cure

Thursday, Sept. 17, 7 p.m.

Due to the recent passing of a dear family member, Dr. Fajgenbaum has asked to postpone this event. We will be in touch once a new date is set.

Presenter: David Fajgenbaum, MD, MBA, MSc, groundbreaking physician-scientist, disease hunter, speaker, and author of the national bestselling memoir, Chasing My Cure: A Doctor's Race to Turn Hope Into Action

Register here! When a twentysomething med student starts experiencing overwhelming fatigue and organ failure out of nowhere, it’s no ordinary case. What do you do when doctors tell you they have no approved treatment for your condition, and you’re read your last rites? That’s what former Georgetown quarterback David Fajgenbaum (Forbes’ 30 Under 30) was faced with—five times. Nicknamed “The Beast” for his strength and stamina, his body was ravaged by an illness that made him unrecognizable—so he dedicated his life and career to finding innovative treatments for mysterious conditions: all while fighting one firsthand.

After being diagnosed with Castleman disease—a deadly illness that presents like a mix of cancer and autoimmune disorder—and relapsing after chemo, it became clear the treatments available weren’t going to be enough: Fajgenbaum was going to have to take matters into his own hands. His radical approach to conducting original medical research with crowdsourcing and treating himself made him a champion for not only the community of those with Castleman, but for the 30 million Americans living with rare conditions. He turned wild, ambitious hope into real action—and the treatment he identified and prescribed himself has brought about a lasting, yet tentative, remission.

Now the co-founder and Executive Director of the Castleman Disease Collaborative Network, Fajgenbaum’s persistence in the face of incredible obstacles has turned into a revolution on rare disease research. Sometimes there are even solutions hiding in plain sight; like how the drug that saved his life was developed 25 years earlier for another illness, and had never been tested for Castleman before. Fajgenbaum’s brand of innovation and determination are inspirational: warm and engaging, he explores how we’re all living in overtime—and what we can do about it. His story of harnessing relentless hope and putting it into action is remarkably compelling, universal, and powerful.

Fajgenbaum has been profiled on the Today Show and Good Morning America, featured in Science, and had a cover story by The New York Times. His memoir Chasing My Cure is a Publisher’s Weekly nonfiction national bestseller. Fajgenbaum is one of the youngest people ever appointed to faculty at UPENN, and is in the top one percent youngest grant awardees of an R01, one of the most sought-after grants in biomedical research.